Mitochondrial disease is an inherited chronic illness that can be present at birth or develop later in life. It causes debilitating physical, developmental, and cognitive disabilities with symptoms including poor growth; loss of muscle coordination; muscle weakness and pain; seizures; vision and/or hearing loss; gastrointestinal issues; learning disabilities; and organ failure.  It is estimated that 1 in 4,000 people has Mito. It’s progressive and there is no cure, according to Mitoaction.org.

Convaid | R82 reached out to seating and mobility expert, Missy Ball, MT, PT, ATP, to share her insights on how Convaid | R82 products can address the needs of children and adolescents living with Mito. You can click on the picture of Convaid | R82 Ambassador Sara to access the video or click here.

Convaid | R82 Ambassador Alexis Synder, an outspoken advocate dedicated to bringing awareness to Mitochondrial conditions writes:

“Ninety percent of all disabilities are not visible. Millions of Americans are living with chronic illnesses and physical limitations. But despite these alarming numbers many people living with these invisible disabilities are continually judged because they look so healthy. Such is the case for my 12-year old daughter. She lives with an invisible disorder that causes fatigue, muscle pain and weakness, and problems with regulating her body temperature with exposure to heat and cold, to name a few. On the outside most days she looks happy and healthy. You see her on good day at school, walking short distances between classes, smiling and laughing with her friends and even playing tag at recess. What you don’t see is that my child can’t keep up with yours. She takes lots of breaks and is skilled adapting the way she plays to conserve energy. You don’t see that she can’t climb stairs without pain and uses the elevator or that a simple fall can mean months of recovering from a muscle injury. You don’t see that a field trip or an outing to the mall or museum is an adventure.”

Click here to read the Part One of her series on Invisible Disabilities and click here for Part Two.

 

 

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