Convaid community partners at Cure SMA have aligned with the Muscular Dystrophy Association in a newborn screening initiative. Already twice this year, Cure SMA has had the opportunity to testify before the federal Advisory Committee on Heritable Disorders on the need for newborn screening for SMA. This committee, part of the Health Resources and Services Administration (HRSA), an agency of the U.S. Department of Health and Human Services, determines which conditions will be added to the Recommend Uniform Screening Panel (RUSP). This is a panel of diseases the federal government recommends to the states for newborn screening.
Convaid and R82 support Cure SMA with a program of planned giving and educational support on seating and mobility.
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