Convaid | R82 Business Development Representative Don Jones will join Candice Burns, Executive Director of the Muscular Dystrophy Association – Central California Chapter for the organization’s annual Muscle Walk on Saturday, September 30, 2017 to be held at Clovis East High School, in the Fresno, California suburb of Clovis.
Ms. Burns said that this year the event is being held at a bigger and more dynamic venue to allow for more people that is expected to bring more people to the annual fundraiser and community outreach event. She said, “This year, we need you to join us at MDA Muscle Walk so we can continue to enhance our support and care, offer the highest-quality programs and accelerate research efforts to bring more treatments to families faster.”
Convaid | R82 will participate in the MDA Clovis walk as well as others in California and throughout the rest of United States in 2018 in an effort to help bring awareness to the 30 plus genetic diseases that are grouped into the labelling of muscular dystrophies.
This condition is generally characterized by progressive weakness and degeneration of the skeletal muscles that control movement. Some forms of MD are seen in infancy or childhood such as Duchenne MD is the most common form of MD and primarily affects boys.
It is caused by the absence of dystrophin, a protein involved in maintaining the integrity of muscle. Onset is between 3 and 5 years and the disorder progresses rapidly. Most boys are unable to walk by age 12, and later need a respirator to breathe.
There is no specific treatment to stop or reverse any form of MD. Treatment may include physical therapy, respiratory therapy, speech therapy, orthopedic appliances used for support, and corrective orthopedic surgery and drug therapies.
The prognosis for people with MD varies according to the type and progression of the disorder. Some cases may be mild and progress very slowly over a normal lifespan, while others produce severe muscle weakness, functional disability, and loss of the ability to walk. Some children with MD die in infancy while others live into adulthood with only moderate disability.